Remote
Ahimsa
@ahimsa_pdx@disabled.social
Vegetarian, book lover📚
Living with ME/CFS since 1990 ♿️ She/Her
ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome
Please use #AltText on images/GIFs/videos ❤️
My posts, no boosts = @ahimsa_pdx@disabled.social@justmytoots.com
1557 Followers
758 Following
50 Posts
Joined November 19, 2022
Location:
Oregon
What is PEM? (Post-Exertional Malaise):
Boosted by @trending@homestead.social
It's frustrating to see people posting ableist comments when they criticize politicians.
I just saw a comment saying Trump must need to wear a diaper. That is not the zinger that you think it is.
Some disabled folks wear diapers or have colostomy bags. Why comment on someone else's body (weight is another common target) instead of their actions or policies?
Please stop the ableist remarks. It shows how little you care about disabled folks.
#Ableism #Disability #Politics
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Boosted by @trending@homestead.social
ME/CFS explained by ducks!
A funny presentation of serious subject matter in less than one minute.
Please watch / boost even if you don't have ME/CFS.
Thank you! ❤️
From diploma.duck on Instagram: https://www.instagram.com/p/DeKkY5-xGkv
Transcript in alt text, let me know if you find errors or important omissions - I tried to include all important details.
@mecfs@fedigroups.social#MEcfs #PwME #ChronicIllness #AltText
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@broadwaybabyto@zeroes.ca
Thank you for continuing to highlight the importance of wearing a mask (respirator)
Masking was important to us when I was the only one with a chronic illness, but now that my husband also has a chronic illness (different diagnosis) it's doubly important!
Adding a selfie (from a few years ago) of how I'll be greeting the trick or treaters at the door - double masking! 😷
#COVID #CovidIsNotOver #WearAMask #YallMasking #Selfie
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"Calling Flock a ‘weapon of mass inspection,’ Wyden backs Oregon ban effort"
https://www.oregonlive.com/politics/2026/10/calling-flock-a-weapon-of-mass-inspection-wyden-backs-oregon-ban-effort.html?gift=13549e14-d950-48d7-8d64-1effc9d3b63f
"A bipartisan effort in the Oregon Legislature to ban Flock cameras and similar devices statewide has received support from Democratic U.S. Sen. Ron Wyden and the Oregon chapter of the American Civil Liberties Union."
#Oregon #Flock #Surveillance #Cameras #Privacy #Wyden #ACLU
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I got both my COVID booster and my flu shot today. Please clap 👏
#COVID #CovidIsNotOver #Influenza #Vaccines
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@debby@hear-me.social
I'd have more faith if they'd also tested folks w/ non-fatiguing illnesses
Plus this, from Chris Ponting:
"Unfortunately, the 2026 study’s claims are impossible to evaluate because the computational methods they used are proprietary, locked within black boxes they term EpiSwitch® Analytical and Data Portals, Knowledgebase and Orion v1 anchor detection. Researchers are thus disallowed from reproducing this study independently."
More here:
https://www.sciencemediacentre.org/expert-reaction-to-study-investigating-shared-biological-mechanisms-between-me-cfs-long-covid-ptsd-rheumatoid-arthritis-and-multiple-sclerosis/
#MEcfs #LongCovid
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Mandating Exercise? Completely Fricking Senseless!
This one is my little rant against doctors who suggest GET (graded exercise therapy). GET does not work and usually makes folks worse.
This point is mentioned in this article if you want to read more: https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed
Archive version for those who avoid The Guardian:
https://archive.is/R7fnL
(thanks to @Rhube@wandering.shop )
#MEcfs #PwME
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RE: https://masto.ai/@transworld/117351383195109089
Another quote from the article:
“I think we should just be honest,” she said. “This is about fundamental freedoms. This is about dignity for people, no matter who you love or how you identify.”
- Michigan Gov. Gretchen Whitmer
Trans rights are human rights!
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Gretchen Whitmer to Democrats questioning their support for trans rights: ‘I’ve never wavered’
https://www.advocate.com/politics/national/gretchen-whitmer-hrc-transgender-rights?1
#transgender #trans #LGBTQ #LGBTQIA
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@debby@hear-me.social I'll add that I really want the results from this research study to be true (I've had ME/CFS since January 1990) but I can't help but be a bit skeptical.
I think biggest breakthrough in ME/CFS research that we've had lately is the DecodeME genetic study from last year:
https://mecfsresearchreview.me/2025/08/11/decodeme-x-marks-the-spot-where-me-cfs-biology-can-be-discovered/
The next step for genetic research would be the Sequence ME & Long Covid study:
https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/
#MEcfs #LongCovid
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@Sheril@mastodon.social I also use my library for DVDs & Blu-rays - so many movies and TV shows are available.
And don't forget the library of things!
https://www.youtube.com/watch?v=jqO5-T0WchA
#Libraries #Community
Don't You (Forget About Things)
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"I look fine, but dealing with chronic illness is my full-time job"
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."
@mecfs@fedigroups.social @longcovid@fedigroups.social#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity
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TL;DR
It's best to use a drop box to return completed mail ballots!
"Oregon and Coos County officials push drop boxes amid mail delays"
https://www.opb.org/article/2026/09/27/oregon-and-coos-county-officials-push-drop-boxes-amid-mail-delays/
"Oregon Secretary of State Tobias Read joined Coos County Clerk Julie Brecke at a town hall meeting in North Bend Thursday, where they urged voters to use ballot drop boxes for the November election and announced a new drop box expected to open in Charleston in October."
#USPol #Oregon #Elections #Voting #VoteByMail #MailBallots
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More quotes:
"Americans often assume that any personal health information they share is protected by HIPAA, the federal privacy law that governs the handling of medical information. But the law generally only applies to specific types of health businesses, including medical offices, hospitals and insurers, not telehealth companies offering prescriptions, counseling, DNA tests and other online services."
#USA #FTC #HIPAA #Privacy #Telehealth #Healthcare
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Boosted by @trending@homestead.social
I was on the phone with a friend this evening and we were both grousing about Google.
She already uses a different search engine (as do I) but then I told her about Open Street Map. She didn't know about it before - she was so excited! 😁
https://www.openstreetmap.org
#DeGoogle #OpenStreetMap
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Medical Excuses Continue - Funding Scarce!
"ME/CFS is the most under-funded condition, receiving <1% of its YLD proportionate funding"
source = https://www.nature.com/articles/s43856-026-01516-7
#MEcfs #PwME
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Here's a direct link to the No Kings map (for Saturday, Oct. 17) to save folks some clicks!
Enter a city or zip code and the map will zoom in to show events near that location.
https://www.nokings.org/#map#USPol #NoKings #Elections
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Boosted by @trending@homestead.social
From NPR (no paywall)
"The Supreme Court rejects Trump's mail voting restrictions for this year's midterms"
https://www.npr.org/2026/09/14/nx-s1-5962190/supreme-court-mail-in-voting-trump
"The Supreme Court has ruled against President Trump, rejecting his efforts to enact new mail-in voting restrictions for the midterm election.
The ruling released Monday by the high court means the U.S. Postal Service is expected to continue delivering ballots as usual."
#USPol #Elections #Voting #VoteByMail #USPS #SCOTUS #VoterSuppression #Resist
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Thank you, Mayor Mamdani!
"DoorDash to pay $131M for underpaying delivery workers in New York City"
https://apnews.com/article/doordash-nyc-delivery-zohran-mamdani-4429800e7bf1b0ba28e064340b857df0
"The agreement, which officials described as the largest worker settlement in city history, also requires the company to submit to a new monitoring system to ensure compliance with delivery worker pay laws in the city."
#USA #NewYork #DoorDash #Delivery #Workers
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"And so we've got to decide that when there is an assault on rights all of us are going to show up for all of our rights, because the minute we assent to one group losing their rights we are assenting to everybody losing their rights."
Video ends with "Abdul for US Senate. Volunteer. Donate. Join our movement."
https://abdulforsenate.com/
5/n
#USPol #TransRights #CivilRights #HumanRights #USSenate
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@dbattistella@mstdn.ca
My husband and I use tuta (@Tutanota@mastodon.social) for sending encrypted email. The account also includes a calendar.
I started with a free account just to test it out and then moved to the paid tier to get some more features.
No affiliation with the company, just a customer.
#Email #Privacy #Encryption
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"Fighting for rights that you don't use or may not understand is about fighting for rights generally.
We're being told that if we only give up, if we sacrifice the rights of some people, then the rest of us get to keep our rights, which we all know is some bullshit.
Because rights are rights are rights are rights."
2/n
#USPol #TransRights #CivilRights #HumanRights
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"And so, I also have certain rights that I use that most people in this room don't use. I put my face on the ground 34 times a day. I value being able to walk into places and do that. I don't need people to understand why. I just need them to agree that the government can't tell me not to.
Similarly, when it comes to trans rights, I don't need people to understand why. I need people to make sure that the government can't come in and tell people not to."
4/n
#USPol #TransRights #HumanRights
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"Whether you use a certain set of rights every day, or have no clue why anybody would want to use them, the idea that the government can come in and come for your rights is itself an assault on all of our rights."
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#USPol #TransRights #CivilRights #HumanRights
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@spiegelmama@infosec.exchange Same!
I want to hear every Democratic candidate clearly state this kind of full support for trans rights, civil rights, and all human rights.
Who even are you if you don't believe in protecting the rights of all?
(added hashtag - I try to remember to add that for folks who filter out politics!)
#USPol
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@jackdaniyel@mastodon.social I hate this so much! 😡
It's bad enough that all these corporate websites are full of tracking and advertisements. It's also bad to be using platforms run by companies that have done so many evil deeds.
But it seems criminal when a government body (funded by taxes paid by citizens) posts public information on a website that *makes you get an account and login* before you can see the information!
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@NDK@mastodonapp.uk @Tutanota@mastodon.social
The encrypted calendar has been so useful for us. It can be updated from my phone, husband's phone, my laptop, his computer, etc. Makes coordination much easier.
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This is probably posted in many places but I saw it on Bluesky:
https://bsky.app/profile/abdulelsayed.bsky.social/post/3mtr3mciq3k2w
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#USPol #TransRights #CivilRights #HumanRights
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@calendsofapril@kolektiva.social
I thought #Alt4Me was the hashtag to use when asking for help with alt text? (sometimes #AltForME but I think that one's fading out)
And #Alt4You was used when adding alt text in a reply to a post with an image/GIF/video that has no alt text?
Maybe either one works? I might have it wrong.
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@KydiaMusic@mastodon.social Oh no, I forgot to pace myself ...
Cuteness overload! 😻
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From #MEAction for Severe ME Day (Aug. 8)
"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"
https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026
"#MEAction is proud to share the Severe ME Artists Project 2026!
... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"
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@mecfs@fedigroups.social#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability
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@NDK@mastodonapp.uk
I've been happy with Tuta (@Tutanota@mastodon.social ) - has encrypted mail and calendar.
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@iBallesty@mastodon.ie @debby@hear-me.social
I have no medical background so I rely on the Science For ME forum (s4me.info) for a lot of information about ME/cfs.
Here's the forum thread where members are discussing this paper (since the pre-print) in case anyone is interested:
https://s4me.info/threads/beyond-genes-episwitch%C2%AE-orion-platform-powered-3d-genome-architecture-biomarkers-reveal-shared-biology-across-me-cfs-lc-ptsd-ra-ms-2026-hunter.52050/
It's a public thread, no need to log in to read.
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