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Ahimsa

@ahimsa_pdx@disabled.social
  • Open on disabled.social

Vegetarian, book lover📚
Living with ME/CFS since 1990 ♿️ She/Her
ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

Please use #AltText on images/GIFs/videos ❤️

My posts, no boosts = @ahimsa_pdx@disabled.social@justmytoots.com

#MEcfs #PwME

1557 Followers
758 Following
50 Posts
Joined November 19, 2022
Location:
Oregon
What is ME/CFS?:
https://s4me.info/threads/fact-sheet-1-introduction-to-me-cfs.51744/#post-596527
What is PEM? (Post-Exertional Malaise):
https://s4me.info/threads/fact-sheet-2-post-exertional-malaise-pem.51745/#post-606969
Open post
Ahimsa @ahimsa_pdx@disabled.social
· 3d ago
Boosted by @trending@homestead.social
It's frustrating to see people posting ableist comments when they criticize politicians. I just saw a comment saying Trump must need to wear a diaper. That is not the zinger that you think it is. Some disabled folks wear diapers or have colostomy bags. Why comment on someone else's body (weight is another common target) instead of their actions or policies? Please stop the ableist remarks. It shows how little you care about disabled folks. #Ableism #Disability #Politics
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 5d ago
Boosted by @trending@homestead.social
ME/CFS explained by ducks! A funny presentation of serious subject matter in less than one minute. Please watch / boost even if you don't have ME/CFS. Thank you! ❤️ From diploma.duck on Instagram: https://www.instagram.com/p/DeKkY5-xGkv Transcript in alt text, let me know if you find errors or important omissions - I tried to include all important details. @mecfs@fedigroups.social#MEcfs #PwME #ChronicIllness #AltText
Instagram
Instagram

Instagram

Create an account or log in to Instagram - Share what you're into with the people who get you.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Boosted by @MaryAustinBooks@mstdn.social
Replying to
@broadwaybabyto@zeroes.ca Thank you for continuing to highlight the importance of wearing a mask (respirator) Masking was important to us when I was the only one with a chronic illness, but now that my husband also has a chronic illness (different diagnosis) it's doubly important! Adding a selfie (from a few years ago) of how I'll be greeting the trick or treaters at the door - double masking! 😷 #COVID #CovidIsNotOver #WearAMask #YallMasking #Selfie
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Boosted by @trending@homestead.social
"Calling Flock a ‘weapon of mass inspection,’ Wyden backs Oregon ban effort" https://www.oregonlive.com/politics/2026/10/calling-flock-a-weapon-of-mass-inspection-wyden-backs-oregon-ban-effort.html?gift=13549e14-d950-48d7-8d64-1effc9d3b63f "A bipartisan effort in the Oregon Legislature to ban Flock cameras and similar devices statewide has received support from Democratic U.S. Sen. Ron Wyden and the Oregon chapter of the American Civil Liberties Union." #Oregon #Flock #Surveillance #Cameras #Privacy #Wyden #ACLU
oregonlive.com
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Boosted by @trending@homestead.social
I got both my COVID booster and my flu shot today. Please clap 👏 #COVID #CovidIsNotOver #Influenza #Vaccines
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Replying to
@debby@hear-me.social I'd have more faith if they'd also tested folks w/ non-fatiguing illnesses Plus this, from Chris Ponting: "Unfortunately, the 2026 study’s claims are impossible to evaluate because the computational methods they used are proprietary, locked within black boxes they term EpiSwitch® Analytical and Data Portals, Knowledgebase and Orion v1 anchor detection. Researchers are thus disallowed from reproducing this study independently." More here: https://www.sciencemediacentre.org/expert-reaction-to-study-investigating-shared-biological-mechanisms-between-me-cfs-long-covid-ptsd-rheumatoid-arthritis-and-multiple-sclerosis/ #MEcfs #LongCovid
sciencemediacentre.org

expert reaction to study investigating shared biological mechanisms between ME/CFS, Long COVID, PTSD, Rheumatoid Arthritis, and Multiple Sclerosis | Science Media Centre

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Many Embarrassing Confusing & Frightening Symptoms #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 3d ago
Replying to
@MaryAustinBooks@mstdn.social 😂
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Missing Everything, Completely Frustrated, Sad #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Mandating Exercise? Completely Fricking Senseless! This one is my little rant against doctors who suggest GET (graded exercise therapy). GET does not work and usually makes folks worse. This point is mentioned in this article if you want to read more: https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed Archive version for those who avoid The Guardian: https://archive.is/R7fnL (thanks to @Rhube@wandering.shop ) #MEcfs #PwME
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
the Guardian

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Boosted by @trending@homestead.social

RE: https://masto.ai/@transworld/117351383195109089

Another quote from the article:

“I think we should just be honest,” she said. “This is about fundamental freedoms. This is about dignity for people, no matter who you love or how you identify.”

  • Michigan Gov. Gretchen Whitmer

Trans rights are human rights!

#Trans #TransRights #HumanRights #LGBTQ #LGBTQIA

Open quoted post
Quoting
Transgender World
@transworld@masto.ai
Gretchen Whitmer to Democrats questioning their support for trans rights: ‘I’ve never wavered’ https://www.advocate.com/politics/national/gretchen-whitmer-hrc-transgender-rights?1 #transgender #trans #LGBTQ #LGBTQIA
Open quoted post
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Multiple Exposures to COVID = Freakish Symptoms #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Replying to
@debby@hear-me.social I'll add that I really want the results from this research study to be true (I've had ME/CFS since January 1990) but I can't help but be a bit skeptical. I think biggest breakthrough in ME/CFS research that we've had lately is the DecodeME genetic study from last year: https://mecfsresearchreview.me/2025/08/11/decodeme-x-marks-the-spot-where-me-cfs-biology-can-be-discovered/ The next step for genetic research would be the Sequence ME & Long Covid study: https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/ #MEcfs #LongCovid
DecodeME: X marks the spot where ME/CFS biology can be discovered
ME/CFS Research Review

DecodeME: X marks the spot where ME/CFS biology can be discovered

Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave their DNA…

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Memory Empty / Cannot Form Sentences #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
[Medical Education Failures Curse Sufferers] Oops, I got the letters in the wrong order due to cognitive issues! How about: Medical Education Completely Failed. Sorry! #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Replying to
@Sheril@mastodon.social I also use my library for DVDs & Blu-rays - so many movies and TV shows are available. And don't forget the library of things! https://www.youtube.com/watch?v=jqO5-T0WchA #Libraries #Community

Don't You (Forget About Things)

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
My Employment Cut F*cking Short #MEcfs #PwME
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Boosted by @trending@homestead.social
"I look fine, but dealing with chronic illness is my full-time job" https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/ "My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going." @mecfs@fedigroups.social @longcovid@fedigroups.social#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity
I look fine, but dealing with chronic illness is my full-time job
Pittsburgh's Public Source

I look fine, but dealing with chronic illness is my full-time job

Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Boosted by @trending@homestead.social
TL;DR It's best to use a drop box to return completed mail ballots! "Oregon and Coos County officials push drop boxes amid mail delays" https://www.opb.org/article/2026/09/27/oregon-and-coos-county-officials-push-drop-boxes-amid-mail-delays/ "Oregon Secretary of State Tobias Read joined Coos County Clerk Julie Brecke at a town hall meeting in North Bend Thursday, where they urged voters to use ballot drop boxes for the November election and announced a new drop box expected to open in Charleston in October." #USPol #Oregon #Elections #Voting #VoteByMail #MailBallots
Oregon and Coos County officials push drop boxes amid mail delays
opb

Oregon and Coos County officials push drop boxes amid mail delays

Oregon Secretary of State Tobias Read joined Coos County Clerk Julie Brecke at a town hall meeting in North Bend Thursday, where they urged voters to use ballot drop boxes for the November election and announced a new drop box expected to open in Charleston in October.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 3w ago
Replying to
More quotes: "Americans often assume that any personal health information they share is protected by HIPAA, the federal privacy law that governs the handling of medical information. But the law generally only applies to specific types of health businesses, including medical offices, hospitals and insurers, not telehealth companies offering prescriptions, counseling, DNA tests and other online services." #USA #FTC #HIPAA #Privacy #Telehealth #Healthcare
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Boosted by @trending@homestead.social
I was on the phone with a friend this evening and we were both grousing about Google. She already uses a different search engine (as do I) but then I told her about Open Street Map. She didn't know about it before - she was so excited! 😁 https://www.openstreetmap.org #DeGoogle #OpenStreetMap
OpenStreetMap
OpenStreetMap

OpenStreetMap

OpenStreetMap is a map of the world, created by people like you and free to use under an open license.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Medical Excuses Continue - Funding Scarce! "ME/CFS is the most under-funded condition, receiving <1% of its YLD proportionate funding" source = https://www.nature.com/articles/s43856-026-01516-7 #MEcfs #PwME
Long COVID disability burden in US adults - Communications Medicine
Nature

Long COVID disability burden in US adults - Communications Medicine

Bonuck et al. quantified the disability burden of Long COVID in U.S. adults using years lived with disability and compared its NIH funding to that of 68 other conditions by sex predominance. Long COVID receives far less funding than warranted by its burden, with female predominant conditions consistently underfunded, implying that both disability impact and sex disparities should play a greater role in research funding decisions.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Here's a direct link to the No Kings map (for Saturday, Oct. 17) to save folks some clicks! Enter a city or zip code and the map will zoom in to show events near that location. https://www.nokings.org/#map#USPol #NoKings #Elections
No Kings
No Kings

No Kings

For more than a year, millions of people have come together to send a clear message: in America, we have no kings. Power doesn't belong to billionaires, strongmen, or politicians who think they're above accountability — it belongs to the people, but only if we use it.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 3w ago
Boosted by @trending@homestead.social
From NPR (no paywall) "The Supreme Court rejects Trump's mail voting restrictions for this year's midterms" https://www.npr.org/2026/09/14/nx-s1-5962190/supreme-court-mail-in-voting-trump "The Supreme Court has ruled against President Trump, rejecting his efforts to enact new mail-in voting restrictions for the midterm election. The ruling released Monday by the high court means the U.S. Postal Service is expected to continue delivering ballots as usual." #USPol #Elections #Voting #VoteByMail #USPS #SCOTUS #VoterSuppression #Resist
The Supreme Court rejects Trump's mail voting restrictions for this year's midterms
NPR

The Supreme Court rejects Trump's mail voting restrictions for this year's midterms

The Supreme Court has rejected the Trump administration's request to allow mail-in voting restrictions under a U.S. Postal Service plan for the midterm general election.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Boosted by @trending@homestead.social
Thank you, Mayor Mamdani! "DoorDash to pay $131M for underpaying delivery workers in New York City" https://apnews.com/article/doordash-nyc-delivery-zohran-mamdani-4429800e7bf1b0ba28e064340b857df0 "The agreement, which officials described as the largest worker settlement in city history, also requires the company to submit to a new monitoring system to ensure compliance with delivery worker pay laws in the city." #USA #NewYork #DoorDash #Delivery #Workers
AP News

DoorDash to pay $131M for underpaying delivery workers in New York City

DoorDash will pay $131.5 million to settle claims that it underpaid delivery workers in New York City. Mayor Zohran Mamdani announced the agreement Tuesday.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
"And so we've got to decide that when there is an assault on rights all of us are going to show up for all of our rights, because the minute we assent to one group losing their rights we are assenting to everybody losing their rights." Video ends with "Abdul for US Senate. Volunteer. Donate. Join our movement." https://abdulforsenate.com/ 5/n #USPol #TransRights #CivilRights #HumanRights #USSenate
Home
Abdul for U.S. Senate

Home

Abdul El-Sayed is running for US Senate in Michigan to get money out of politics, put money in your pocket, and pass Medicare for All.

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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@dbattistella@mstdn.ca My husband and I use tuta (@Tutanota@mastodon.social) for sending encrypted email. The account also includes a calendar. I started with a free account just to test it out and then moved to the paid tier to get some more features. No affiliation with the company, just a customer. #Email #Privacy #Encryption
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Open post
Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
Mental Exhaustion / Can't Find Solace #MEcfs #PwME
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
"Fighting for rights that you don't use or may not understand is about fighting for rights generally. We're being told that if we only give up, if we sacrifice the rights of some people, then the rest of us get to keep our rights, which we all know is some bullshit. Because rights are rights are rights are rights." 2/n #USPol #TransRights #CivilRights #HumanRights
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
"And so, I also have certain rights that I use that most people in this room don't use. I put my face on the ground 34 times a day. I value being able to walk into places and do that. I don't need people to understand why. I just need them to agree that the government can't tell me not to. Similarly, when it comes to trans rights, I don't need people to understand why. I need people to make sure that the government can't come in and tell people not to." 4/n #USPol #TransRights #HumanRights
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
"Whether you use a certain set of rights every day, or have no clue why anybody would want to use them, the idea that the government can come in and come for your rights is itself an assault on all of our rights." 3/n #USPol #TransRights #CivilRights #HumanRights
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
@spiegelmama@infosec.exchange Same! I want to hear every Democratic candidate clearly state this kind of full support for trans rights, civil rights, and all human rights. Who even are you if you don't believe in protecting the rights of all? (added hashtag - I try to remember to add that for folks who filter out politics!) #USPol
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@jackdaniyel@mastodon.social I hate this so much! 😡 It's bad enough that all these corporate websites are full of tracking and advertisements. It's also bad to be using platforms run by companies that have done so many evil deeds. But it seems criminal when a government body (funded by taxes paid by citizens) posts public information on a website that *makes you get an account and login* before you can see the information!
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@beecycling@wandering.shop @elmiller0330@disabled.social Po-Tay-toes!
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Ahimsa @ahimsa_pdx@disabled.social
· 4w ago
Replying to
@MFennVT@mastodon.world Crossing my fingers for you! 🤞
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
@NDK@mastodonapp.uk @Tutanota@mastodon.social The encrypted calendar has been so useful for us. It can be updated from my phone, husband's phone, my laptop, his computer, etc. Makes coordination much easier.
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
This is probably posted in many places but I saw it on Bluesky: https://bsky.app/profile/abdulelsayed.bsky.social/post/3mtr3mciq3k2w 6/6 #USPol #TransRights #CivilRights #HumanRights
Abdul El-Sayed (@abdulelsayed.bsky.social)
Bluesky Social

Abdul El-Sayed (@abdulelsayed.bsky.social)

We're being told that if we sacrifice the rights of some people, then the rest of us get to keep our rights. We all know that's some BS.

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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@Overgoddess@bardicperspiration.club Agreed!
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@calendsofapril@kolektiva.social I thought #Alt4Me was the hashtag to use when asking for help with alt text? (sometimes #AltForME but I think that one's fading out) And #Alt4You was used when adding alt text in a reply to a post with an image/GIF/video that has no alt text? Maybe either one works? I might have it wrong.
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@sk@catcatnya.com That's a great photo. Kudos to your grandma!
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@KydiaMusic@mastodon.social Oh no, I forgot to pace myself ... Cuteness overload! 😻
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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
From #MEAction for Severe ME Day (Aug. 8) "Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026" https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026 "#MEAction is proud to share the Severe ME Artists Project 2026! ... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community" 1/3 @mecfs@fedigroups.social#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability
Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026
#MEAction

Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026

#MEAction is proud to share the Severe ME Artists Project 2026-check out the video & gallery!

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Ahimsa @ahimsa_pdx@disabled.social
· 2mo ago
Replying to
@Voline@kolektiva.social @rgarner@mastodon.social Absolutely! 😴
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Ahimsa @ahimsa_pdx@disabled.social
· 1mo ago
Replying to
@NDK@mastodonapp.uk I've been happy with Tuta (@Tutanota@mastodon.social ) - has encrypted mail and calendar.
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Ahimsa @ahimsa_pdx@disabled.social
· 1w ago
Replying to
@iBallesty@mastodon.ie @debby@hear-me.social I have no medical background so I rely on the Science For ME forum (s4me.info) for a lot of information about ME/cfs. Here's the forum thread where members are discussing this paper (since the pre-print) in case anyone is interested: https://s4me.info/threads/beyond-genes-episwitch%C2%AE-orion-platform-powered-3d-genome-architecture-biomarkers-reveal-shared-biology-across-me-cfs-lc-ptsd-ra-ms-2026-hunter.52050/ It's a public thread, no need to log in to read.
Science for ME

Beyond genes: EpiSwitch® & Orion platform-powered 3D genome architecture biomarkers reveal shared biology across ME/CFS, LC, PTSD, RA&MS, 2026, Hunter

Beyond genes: EpiSwitch® and Orion platform-powered 3D genome architecture biomarkers reveal shared biology across ME/CFS, long COVID, PTSD, rheumatoid arthritis, and multiple sclerosis Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID (LC19)...

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Ahimsa @ahimsa_pdx@disabled.social
· 2w ago
Replying to
May Exhibit Crankiness, Frustration, Sarcasm #MEcfs #PwME
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