#postexertionalmalaise

I recently found some interesting information about exercise-related PEM (post-exertional malaise). There's conflicting info out there, but there's a chance that PEM could be part of Sjogren's disease as well. Previously the party line was that PEM was unique to ME/CFS. I have this as an agenda item for my neurologist who diagnosed me with ME/CFS before I got my Sjogren's disease diagnosis. It'd be nice to simplify my diagnoses if I can. #MECFS #SjogrensDisease #PostExertionalMalaise

🧵 Another excellent blog by Fred Rossi who is well worth following "The Patient Who Isn’t Supposed to Exist" https://darthfoo.substack.com/p/the-patient-who-isnt-supposed-to Nominally on the recent, controversial WIRED article but the points are pretty general #LongCovid #MEcfs #PostExertionalMalaise #PEM #PwME #ME #MyalgicE @mecfs@fedigroups.social @longcovid@fedigroups.social 1/

I like many other people thought this blog post was very good "Why I Can’t Just Meet You for Dinner" https://substack.com/home/post/p-178293036 Screenshot from AMMES May 2026 Newsletter #MEcfs @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PostExertionalMalaise#PwME #ME #MyalgicE @mecfs@fedigroups.social