#myalgice

New research from sympathetic & knowledgeable Physios for ME team et al. Experiences of pacing with a heart rate monitor for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Free fulltext: https://www.tandfonline.com/doi/full/10.1080/21641846.2026.2681411 #MEcfs #PwME #ME #MyalgicE @mecfs@fedigroups.social

From Germany 🇩🇪 Evaluation of an Integrated Multidisciplinary Care Model for [ME/CFS]: A Prospective, Open-label, ...study https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698 "Post-rehabilitation Bell Disability Scale scores decreased [i.e. worsened] In 42/94 (45%) and increased in only 13/94 (14%) patients" #MEcfs #PwME #ME #MyalgicE @mecfs@fedigroups.social

🧵 Another excellent blog by Fred Rossi who is well worth following "The Patient Who Isn’t Supposed to Exist" https://darthfoo.substack.com/p/the-patient-who-isnt-supposed-to Nominally on the recent, controversial WIRED article but the points are pretty general #LongCovid #MEcfs #PostExertionalMalaise #PEM #PwME #ME #MyalgicE @mecfs@fedigroups.social @longcovid@fedigroups.social 1/